Electric Bike Technologies is Donating its Popular Liberty Trike to Children with a Rare Neuromuscular Disease.
Posted by Jim Dewan on
Do you listen to Jason Kraft on The One with Greg Gutfeld Podcast? Jason spoke about how Electric Bike Technologies is donating 10 Liberty Trikes to children with a rare neuromuscular disease called Spinal Muscular Atrophy (SMA).
SMA is a genetic disorder that starts in the central nervous system and affects all the muscles in the body. Due to the degenerative nature of the disease, babies, kids, and adults with SMA will experience a decline in muscle strength over time although the rate and severity can vary among individuals. “Kids with SMA deserve a better mobility option. And their parents, that give everything to make their children’s lives better, could use a little help” said Jason Kraft, CEO at Electric Bike Technologies.
EBT’s decision to donate the trikes started last year when Kimberly, the mother of Allison, an 11-year-old girl with SMA emailed the company for advice on any electric trike that might help Allison get some much-needed physical therapy and keep up with her siblings on family bike rides. A week later Kim and Allison were in EBT’s warehouse for a test ride. “I’ve never seen anyone take to any of our electric trikes the way Allison took to the Liberty Trike”, said Jason. “I was moved by Allison but something bigger hit me like a ton of bricks that day. I have three kids close to Allison’s age and it was crystal clear that Kim would sacrifice anything to improve Allison’s quality of life. At that moment, I knew we were not only going to help Allison, but we were going to help Kim too.”
Electric Bike Technologies is committed to donating 10 Liberty Trikes to deserving families in 2020 and plans on doubling that number in 2021. EBT has enlisted Kimberly to help in that effort and at the time of this press release, four of the first ten recipients have been chosen. Kim is hard at work finding the next six.
- Tags: Bucks county, coronavirus, COVID-19, Croydon, Cure SMA, Electric Bike Store, electric bike technologies, electricbikestore, Families of SMA, Greg Gutfeld, Greg Gutfeld Podcast, infantile-onset SMA, Jason Kraft, mobility issues, Mobility problems, newfoundfreedom, pedal-assist, SMA, SMA Families, SMN1, Spinal Muscular Atrophy, Spinraza, tricycles, trikes, Type 1 SMA, Type 2 SMA, Type 3 SMA, Type 4 SMA, Werdnig-Hoffmann disease